All Members

Full Member Registries transmit case data on all congenital anomaly cases in their region.

Associate Member Registries transmit an aggregate file containing the total number of cases in each congenital anomaly subgroup by type of birth.

Affiliate Member Registries do not transmit data to EUROCAT but participate in meetings and projects. New Members are Affiliate Members until their first set of data has been published on the EUROCAT website at which time their membership status transfers to Full or Associate.

Past Members are those who have closed their activities or have made such fundamental organisational changes that a new membership application is required.

Please click on the highlighted Registry names to get access to their Registry Descriptions

Full Members

     Austria, Styria (last updated 20 August 2009)
     Prof Martin Haeusler
     Styrian Malformation Registry
     University of Graz
     Auenbruggerplatz 14
     AT-8036 Graz, Austria

     Tel: +43 316 385 81079
     Fax: +43 316 385 3199
     Email: martin.haeusler@medunigraz.at

Belgium, Antwerp
Dr Vera Nelen

Provinciaal Instituut voor Hygiene

Kronenburgstraat 45

B-2000 Antwerp, Belgium

Tel: +32 3 2591 270

Fax: +32 3 2591 201

Email: vera.nelen@pih.provant.be

Belgium, Hainaut-Namur (last updated 5 February 2010)

Prof Christine Verellun-Dumoulin

Institut de Morphologie Pathologique

Avenue G Lemaitre 25

6041 Charleroi (Gosselies), Belgium

Tel: +32 71 447 184

Fax: +32 71 471 520

Email: christine.verellen.dumoulin@ipg.be

Croatia, Zagreb (last updated 26 July 2010)

Dr Ingeborg Barisic

Children's Hospital Zagreb

Klaiceva 16

CRO-10000 Zagreb, Croatia
Tel: +385 1 4600 141

Fax: +385 1 4600 160

     Email: ibarisic@kdb.hr

     Denmark, Odense (last updated 28 August 2009)
     Dr Ester Garne

Epidemiology, University of Southern Denmark

J.B. Winslows Vej 9

Dk-5000 Odense, Denmark

Tel: +45 7636 2000 (Local 2219)

Fax: +45 7636 3474

Email: egarne@health.sdu.dk

France, Paris (last updated 28 April 2010)

Dr Babak Khoshnood

INSERM U953

Hopital Saint Vincent de Paul

82 av Denfert-Rocherau

75014 Paris, France

Tel: +33 1 4234 5575

Fax:

Email: babak.khoshnood@inserm.fr

France, Ile de la Reunion (last updated 5 July 2010)

Dr Hanitra Randrianaivo

Naitre Aujhourd'hui

BP 904-97478 Saint Denis Cedex

Ile de la Reunion

Tel: +33 2 6020 1339

Fax: +33 2 6041 0633

Email: naitreajd@wanadoo.fr

France, Strasbourg (last updated 5 February 2010)

Dr Berenice Doray

Service de genetique Medicale

Hopitale de Hautepierre

Avenue Moiere

F-67098 Strasbourg Cedex, France

Tel: 33 3 8812 8120

Fax: 33 3 8812 8125

Email: berenice.doray@chru-strasbourg.fr

Germany, Mainz (last updated 5 February 2010)

Dr Annette Queisser-Luft

Universitatskinderklinik Mainz

Langenbeckstrasse 1, Postfach 3960

D-55101 Mainz, germany

Tel: +49 6131 172 773

Fax: +49 6131 176 608

Email: queisser@kinder.klinik.uni-mainz.de

Germany, Saxony-Anhalt (last updated 17 March 2010)

Dr Anke Rissmann MD

Malformation Monitoring Centre Saxony-Anhalt

Medical Faculty, Otto-von-Guericke University

Leipziger Strasse, Haus 39

D-39120 Magdeburg, Germany

Tel: +49 391 67 14174

Fax: +49 391 67 14176

Email: monz@med.ovgu.de

Web: http://www.angeborene-fehlbildungen.com

Ireland, Cork & Kerry (last updated 4 September 2009)

Dr Mary O'Mahony

Specialist in Public Health Medicine

Department of Public Health

SHB Sarsfield House, Sarsfield Road

Wilton, Cork, Ireland

Tel: +353 21 4927 601

Fax: +353 21 4346 063

Email: maryt.omahony@mailp.hse.ie

Ireland, Dublin (last updated 20 August 2009)

Dr Bob McDonnell

Health Information Unit

Health Service Executive

Dr Steevens Hospital

Dublin 8, Ireland

Tel: +353 1 6352 750

Fax: +353 1 6795 061

Email: bob.mcdonnell@mailf.hse.ie

Ireland, South East (last updated 10 August 2010)

Dr Carmel Mullaney

Specialist in Public Health Medicine

Department of Public Health

Health Service Executive - South East

Lacken, Dublin Road

Kilkenny, Ireland

Tel: +353 87 9687 349

Fax:

Email: carmel.mullaney@hse.ie

Italy, Emilia Romagna [Demographic Change] (last updated 20 February 2008)

Prof Elisa Calzolari

IMER, Dipartimento di Medicina Sperimentale e Diagnostica

Sezione di Genetica Medica

Universita di Ferrara

Via Fossato di Mortara 74

44100 Ferrara, Italy

Tel: +39 0532 974 420

Fax: +39 0532 236 157

Email: imer@unife.it

Web: www.unife.it/imer/

Italy, Tuscany (last updated 16 September 2009)

Dr Fabrizio Bianchi

Unit of Epidemiology

CNR Institute of Clinical Physiology

Via Trieste 41

I-56126 Pisa, Italy

Tel: +39 050 3152 100

Fax: +39 050 3152 095

Email: fabriepi@ifc.cnr.it

Malta (last updated 12 May 2010)

Dr Miriam Gatt

Malta Congenital Anomalies Registry

Department of Health Information

G'mangia Hill, G'mangia

PTA 1313, Malta

Tel: +356 2559 9000

Fax: +356 2559 9385

Email: miriam.gatt@gov.mt

Netherlands, North (last updated 31 August 2009)

Ms Marian Bakker

Department of Medical Genetics

University of Groningen

P O Box 30.001

9700 RB Groningen, The Netherlands

Tel: +31 50 3617 110

Fax: +31 50 3187 268

Email: m.k.bakker@medgen.umcg.nl

Web: http://www.eurocatnederland.nl

     Norway [1980-1998 Combined Data] [1980 Data] [1981 Data] [1982 Data] [1983 Data] [1984 Data] [1985 Data] [1986 Data]
          [1987 Data] [1988 Data] [1989 Data] [1990 Data] [1991 Data] [1992 Data] [1993 Data] [1994 Data] [1995 Data]
          [1996 Data] [1997 Data] [1998 Data] (last updated 28 August 2009)

Prof Stein Emil Vollset

Medical Birth Registry of Norway

Kalfarveien 31, N-5018

Bergen, Norway

Tel: +47 5320 4002

Fax: +47 5320 4001

Email: vollset@uib.no or stein.emil.vollset@fhi.no

Poland, Wielkopolska

Dr Anna Latos-Bielenska

Polish Registry of Congenital Malformations

Department of Medical Genetics

Ul. Szpitalna 27/33

60-572 Poznan, Poland

Tel: +48 61 8491 410

Fax: +48 61 8476 394

Email: alatos@amp.edu.pl

Portugal, South (last updated 30 November 2009)

Dr Carlos Matias Dias

Centro de Estudos e registo de A C

Av Padre Cruz

1649-016 Lisbon, Portugal

Tel: +351 21 751 9200

Fax: +351 21 752 6499

Email: carlos.dias@insa.min-saude.pt

Spain, Barcelona (last updated 31 August 2009)

Dr Joaquin Salvador

SESIS

Agencia de Salut Publica de Barcelona

Placa Lesseps 1

E-08023 Barcelona, Spain

Tel: +34 32 384 545

Fax: +34 32 173 197

Email: jsalvado@aspb.cat

Web: www.aspb.es

Spain, Basque Country (last updated 31 August 2009)

Dr Larraitz Arriola

Registro Anomalias Congenitas CAV

Direccion de Salud Publica

Donostia-San Sebastian 1

01010 Vitoria-Gasteiz, Spain

Tel: +34 94 3022770

Fax: +34 94 3022750

Email: l-arriola@ej-gv.es

Switzerland, Vaud (last updated 31 August 2009)

Dr Marie-Claude Addor

Registre Vaudois des Malformations

Division Autonome de Genetique Medicale

CHUV, CH-1011 Lausanne, Switzerland

Tel: +41 21 3143 391

Fax: +41 21 3143 392

Email: marie-claude.addor@chuv.ch

Web: http://www.hospvd.ch/public/chuv/genmol/home.htm

Ukraine, OMNI-Net (last Updated 9 September 2009)

Dr Wladimir Wertelecki

Department of Medical genetics

University of South Alabama

307 University Blvd, CCCB 274

Mobile, Alabama, USA 36688

Tel: +1 251 460 7505

Fax: +1 251 460 7505

Email: genfir3@gmail.com

UK, Northern England (last updated 10 September 2009)

Dr Martin Ward Platt

Institute of Health and Society

Newcastle University

Newcastle upon Tyne, UK, NE2 4AA

Tel: +44 191 2225 267

Fax: +44 191 2228 211

Email: m.p.ward-platt@ncl.ac.uk

UK, Thames Valley (last updated 16 September 2009)

Dr Patricia Boyd

National Perinatal Epidemiology Unit

University of Oxford, Old Road Campus

Headington, Oxford, UK, OX3 7LG

Tel: +44 1865 289 721

Fax: +44 1865 289 720

Email: carobb@npeu.ox.ac.uk

UK, East Midlands & South Yorkshire (EMSYCAR) (last updated 6 August 2010)

Prof Elizabeth Draper

Dept of Epidemiology & Public Health

University of Leicester

22-28 Princess Road West

Leicester, UK, LE1 6TP

Tel: +44 116 252 3200

Fax: +44 116 252 3272

Email: msn@leicester.ac.uk

UK, Wales (CARIS) (last updated 18 March 2010)

Mr David Tucker

Congenital Anomaly register & Info Service

Level 3 West Wing

Singleton Hospital, Sketty Lane

Swansea, Wales, UK, SA2 8QA

Tel: +44 1792 285 241

Fax: +44 1792 285 242

Email: dave.tucker@nphs.wales.nhs.uk

UK, Wessex (last updated 26 August 2009)

Dr Diana Wellesley

Wessex Clinical genetics Service

Princess Anne Hospital

Coxford Road

Southampton, UK, SO16 5YA

Tel: +44 2380 796 167

Fax: +44 2380 794 346

     Email: dgw@soton.ac.uk

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Associate Members

     Czech Republic (last updated 18 June 2009)
     Dr Antonin Sipek
     Department of Medical Genetics
     Thomayer University Hospital
     Videnska 800
     Prague 4, 14059 Czech Republic
     Tel: +420 26108 3636
     Fax: +420 26108 3636
     Email: registrvvv@vrozene-vady.cz

     Finland (last updated 5 February 2010)

Dr Annukka Ritvanen

Finnish Register of Congeital Malformations

National Institute for Health & Welfare

Lintulahdenkuja 4, P O Box 230

00530 Helsinki, Finland

Tel: +358 20 6107 376

Fax: +358 20 6107 459

Email: annukka.ritvanen@thl.fi

France, Rhone-Alps (REMERA) (last updated 21 February 2009)

Dr Emmanuelle Amar

Registre des Malformations en Rhone Alpes

Faculte Laennec

7-9 Rue Guillauma Paradin

69372 Lyon, France

Tel: +33 4 7877 1058

Fax:

Email: emmanuelle.amar@orange.fr

Poland

Dr Anna Latos-Bielenska

Polish Registry of Congenital Malformations

Department of Medical Genetics

Ul. Szpitalna 27/33

60-572 Poznan, Poland

Tel: +48 61 8491 410

Fax: +48 61 8476 394

Email: alatos@amp.edu.pl

Spain, Hospital Network (ECEMC) (last updated 11 March 2010)

Prof Maria-Luisa Martinez-Frias

Director of the ECEMC & CIAC

Pavilioon 3, 1st Floor

Instituto de Salud Carlos III

Avda. Monforte de Lemos 3

E-28029 Madrid, Spain

Tel: +34 91 822 2424

Fax: +34 91 387 7541

Email: mlmartinez.frias@isciii.es

Sweden

Dr Karin Kallen

The Swedish National Board of Health and Welfare

Dept of Reproduction Epidemiology

Institution of Clinical Sciences

University of Lund, Sweden

Tel: +46 46 2227538

Fax:

Email: karin.kallen@med.lu.se

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Affiliate Members

     France, French West Indies (last updated 10 June 2009)
     Dr Bruno Schaub
     Coordonnateur du CPDP

     Registre des Malformations des Antilles
     MFME, CHU, BP632
     97261 Fort de France
     Tel:
     Fax:
     Email: bruno.schaub@chu-fortdefrance.fr

     Hungary (last updated 3 November 2009)

Dr Judit Beres

National centre for Healthcare Audit & Inspection

Dept of congenital Anomalies & Rare Diseases Surveillance

Budapest, Gyali u.2-6

Hungary

Tel: +36 1 4761129

Fax: +36 1 4761389

Email: judit.beres@oszmk.antsz.hu

Italy, Campania (last updated 16 September 2009)

Dr Gioacchino Scarano

Registro Campano Difetti Congeniti

Azienda Ospedaliera "R Rummo"

Via dell'Angelo 1

82100 Benevento, Italy

Tel: +39 0824 357 374

Fax: +39 0824 457 495

Email: giorecam@tin.it

Italy, Sicily (ISMAC)

Dr Sebastiano Bianca

Registro ISMAC, Via XXXI Maggio 51

I-92123 Catania

Sicily, Italy

Tel: +39 095 222 532

Fax: +39 095 914 330

Email: sebastiano.bianca@tiscalinet.it

     Slovenia
     Dr Gorazd Rudolf
     The Slovenia Registry of Congenital Abnormalities (SRCA)
     Institute of Medical Genetics
     Dept of Obstetrics & Gynecology
     Slajmerjeva 3
     1000 Ljubljana, Slovenia
     Tel: +386 1 5401137
     Fax: +386 1 5401137
     Email: slovenianrca@gmail.com

UK, Bristol (SWCAR)

Dr Rosie Thompson

Level D, St Michaels Hospital

Southwell Street

Bristol, UK, BS2 8EG

Tel: +44 117 928 5141

Fax:

Email: r.l.thompson@bristol.ac.uk

UK, NDSCR (last updated 18 June 2009)

Dr Joan Morris

Wolfson Institute of Preventive Medicine

Department of Environmental & Preventive Medicine