Full Members

Full Member Registries transmit case data on all congenital anomaly cases in their region.

Please click on the highlighted Registry names to get access to their Registry Descriptions

     Austria, Styria (last updated 20 August 2009)
     Prof Martin Haeusler
     Styrian Malformation Registry
     University of Graz
     Auenbruggerplatz 14
     AT-8036 Graz, Austria

     Tel: +43 316 385 81079
     Fax: +43 316 385 3199
     Email: martin.haeusler@medunigraz.at

Belgium, Antwerp
Dr Vera Nelen

Provinciaal Instituut voor Hygiene

Kronenburgstraat 45

B-2000 Antwerp, Belgium

Tel: +32 3 2591 270

Fax: +32 3 2591 201

Email: vera.nelen@pih.provant.be

Belgium, Hainaut-Namur (last updated 5 February 2010)

Prof Christine Verellun-Dumoulin

Institut de Morphologie Pathologique

Avenue G Lemaitre 25

6041 Charleroi (Gosselies), Belgium

Tel: +32 71 447 184

Fax: +32 71 471 520

Email: christine.verellen.dumoulin@ipg.be

Croatia, Zagreb (last updated 26 July 2010)

Dr Ingeborg Barisic

Children's Hospital Zagreb

Klaiceva 16

CRO-10000 Zagreb, Croatia
Tel: +385 1 4600 141

Fax: +385 1 4600 160

Email: ibarisic@kdb.hr

Denmark, Odense (last updated 28 April 2010)

Dr Ester Garne

Epidemiology, University of Southern Denmark

J.B. Winslows Vej 9

Dk-5000 Odense, Denmark

Tel: +45 7636 2000 (Local 2219)

Fax: +45 7636 3474

Email: egarne@health.sdu.dk

France, Paris (last updated 8 September 2009)

Dr Babak Khoshnood

INSERM U953

Hopital Saint Vincent de Paul

82 av Denfert-Rocherau

75014 Paris, France

Tel: +33 1 4234 5575

Fax:

Email: babak.khoshnood@inserm.fr

France, Ile de la Reunion (last updated 5 July 2010)

Dr Hanitra Randrianaivo

Naitre Aujhourd'hui

BP 904-97478 Saint Denis Cedex

Ile de la Reunion

Tel: +33 2 6020 1339

Fax: +33 2 6041 0633

Email: naitreajd@wanadoo.fr

France, Strasbourg (last updated 5 February 2010)

Dr Berenice Doray

Service de genetique Medicale

Hopitale de Hautepierre

Avenue Moiere

F-67098 Strasbourg Cedex, France

Tel: 33 3 8812 8120

Fax: 33 3 8812 8125

Email: berenice.doray@chru-strasbourg.fr

Germany, Mainz (last updated 5 February 2010)

Dr Annette Queisser-Luft

Universitatskinderklinik Mainz

Langenbeckstrasse 1, Postfach 3960

D-55101 Mainz, germany

Tel: +49 6131 172 773

Fax: +49 6131 176 608

Email: queisser@kinder.klinik.uni-mainz.de

Germany, Saxony-Anhalt (last updated 17 March 2010)

Dr Anke Rissmann MD

Malformation Monitoring Centre Saxony-Anhalt

Medical Faculty, Otto-von-Guericke University

Leipziger Strasse, Haus 39

D-39120 Magdeburg, Germany

Tel: +49 391 67 14174

Fax: +49 391 67 14176

Email: monz@med.ovgu.de

Web: http://www.angeborene-fehlbildungen.com

Ireland, Cork & Kerry (last updated 4 September 2009)

Dr Mary O'Mahony

Specialist in Public Health Medicine

Department of Public Health

SHB Sarsfield House, Sarsfield Road

Wilton, Cork, Ireland

Tel: +353 21 4927 601

Fax: +353 21 4346 063

Email: maryt.omahony@mailp.hse.ie

Ireland, Dublin (last updated 20 August 2009)

Dr Bob McDonnell

Health Information Unit

Health Service Executive

Dr Steevens Hospital

Dublin 8, Ireland

Tel: +353 1 6352 750

Fax: +353 1 6795 061

Email: bob.mcdonnell@mailf.hse.ie

Ireland, South East (last updated 10 August 2010)

Dr Carmel Mullaney

Specialist in Public Health Medicine

Department of Public Health

Health Service Executive - South East

Lacken, Dublin Road

Kilkenny, Ireland

Tel: +353 87 9687 349

Fax:

Email: carmel.mullaney@hse.ie

Italy, Emilia Romagna [Demographic Change] (last updated 20 February 2008)

Prof Elisa Calzolari

IMER, Dipartimento di Medicina Sperimentale e Diagnostica

Sezione di Genetica Medica

Universita di Ferrara

Via Fossato di Mortara 74

44100 Ferrara, Italy

Tel: +39 0532 974 420

Fax: +39 0532 236 157

Email: imer@unife.it

Web: www.unife.it/imer/

Italy, Tuscany (last updated 16 September 2009)

Dr Fabrizio Bianchi

Unit of Epidemiology

CNR Institute of Clinical Physiology

Via Trieste 41

I-56126 Pisa, Italy

Tel: +39 050 3152 100

Fax: +39 050 3152 095

Email: fabriepi@ifc.cnr.it

Malta

Dr Miriam Gatt

Malta Congenital Anomalies Registry

Department of Health Information

G'mangia Hill, G'mangia

PTA 1313, Malta

Tel: +356 2559 9000

Fax: +356 2559 9385

Email: miriam.gatt@gov.mt

Netherlands, North (last updated 31 August 2009)

Ms Marian Bakker

Department of Medical Genetics

University of Groningen

P O Box 30.001

9700 RB Groningen, The Netherlands

Tel: +31 50 3617 110

Fax: +31 50 3187 268

Email: m.k.bakker@medgen.umcg.nl

Web: http://www.eurocatnederland.nl

     Norway [1980-1998 Combined Data] [1980 Data] [1981 Data] [1982 Data] [1983 Data] [1984 Data] [1985 Data] [1986 Data]
          [1987 Data] [1988 Data] [1989 Data] [1990 Data] [1991 Data] [1992 Data] [1993 Data] [1994 Data] [1995 Data]
          [1996 Data] [1997 Data] [1998 Data] (last updated 28 August 2009)

Prof Stein Emil Vollset

Medical Birth Registry of Norway

Kalfarveien 31, N-5018

Bergen, Norway

Tel: +47 5320 4002

Fax: +47 5320 4001

Email: vollset@uib.no or stein.emil.vollset@fhi.no

Poland, Wielkopolska

Dr Anna Latos-Bielenska

Polish Registry of Congenital Malformations

Department of Medical Genetics

Ul. Szpitalna 27/33

60-572 Poznan, Poland

Tel: +48 61 8491 410

Fax: +48 61 8476 394

Email: alatos@amp.edu.pl

Portugal, South (last updated 30 November 2009)

Dr Carlos Matias Dias

Centro de Estudos e registo de A C

Av Padre Cruz

1649-016 Lisbon, Portugal

Tel: +351 21 751 9200

Fax: +351 21 752 6499

Email: carlos.dias@insa.min-saude.pt

Spain, Barcelona (last updated 31 August 2009)

Dr Joaquin Salvador

SESIS

Agencia de Salut Publica de Barcelona

Placa Lesseps 1

E-08023 Barcelona, Spain

Tel: +34 32 384 545

Fax: +34 32 173 197

Email: jsalvado@aspb.cat

Web: www.aspb.es

Spain, Basque Country (last updated 31 August 2009)

Dr Larraitz Arriola

Registro Anomalias Congenitas CAV

Direccion de Salud Publica

Donostia-San Sebastian 1

01010 Vitoria-Gasteiz, Spain

Tel: +34 94 3022770

Fax: +34 94 3022750

Email: l-arriola@ej-gv.es

Switzerland, Vaud (last updated 31 August 2009)

Dr Marie-Claude Addor

Registre Vaudois des Malformations

Division Autonome de Genetique Medicale

CHUV, CH-1011 Lausanne, Switzerland

Tel: +41 21 3143 391

Fax: +41 21 3143 392

Email: marie-claude.addor@chuv.ch

Web: http://www.hospvd.ch/public/chuv/genmol/home.htm

Ukraine, OMNI-Net (last Updated 9 September 2009)

Dr Wladimir Wertelecki

Department of Medical genetics

University of South Alabama

307 University Blvd, CCCB 274

Mobile, Alabama, USA 36688

Tel: +1 251 460 7505

Fax: +1 251 460 7505

Email: genfir3@gmail.com

UK, Northern England (last updated 10 September 2009)

Dr Martin Ward Platt

Institute of Health and Society

Newcastle University

Newcastle upon Tyne, UK, NE2 4AA

Tel: +44 191 2225 267

Fax: +44 191 2228 211

Email: m.p.ward-platt@ncl.ac.uk

UK, Thames Valley (last updated 16 September 2009)

Dr Patricia Boyd

National Perinatal Epidemiology Unit

University of Oxford, Old Road Campus

Headington, Oxford, UK, OX3 7LG

Tel: +44 1865 289 721

Fax: +44 1865 289 720

Email: carobb@npeu.ox.ac.uk

UK, East Midlands & South Yorkshire (EMSYCAR) (last updated 6 August 2010)

Prof Elizabeth Draper

Dept of Epidemiology & Public Health

University of Leicester

22-28 Princess Road West

Leicester, UK, LE1 6TP

Tel: +44 116 252 3200

Fax: +44 116 252 3272

Email: msn@leicester.ac.uk

UK, Wales (CARIS) (last updated 18 March 2010)

Mr David Tucker

Congenital Anomaly register & Info Service

Level 3 West Wing

Singleton Hospital, Sketty Lane

Swansea, Wales, UK, SA2 8QA

Tel: +44 1792 285 241

Fax: +44 1792 285 242

Email: dave.tucker@nphs.wales.nhs.uk

UK, Wessex (last updated 26 August 2009)

Dr Diana Wellesley

Wessex Clinical Genetics Service

Princess Anne Hospital

Coxford Road

Southampton, UK, SO16 5YA

Tel: +44 2380 796 167

Fax: +44 2380 794 346

Email: dgw@soton.ac.uk

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