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Application for Membership

 

 

EUROCAT is a project of the European Union for the epidemiologic surveillance of congenital anomalies. The basis of the project is to establish, in each of the countries of Europe, one or several regional registries recording all cases of congenital anomaly occurring in a geographically defined population. The participation of registries from European countries outside the European Union is welcomed. The co-ordination of the Project is financed by the European Union. The financing of the registration activities in each centre is the responsibility of Member States. The EUROCAT Project started in 1979 and, by 2005, 40 registries situated in 20 countries were participating in the study and regularly transmitting data. It is possible for other registries to apply for EUROCAT membership providing the following conditions are met:

 

1.	A formal application for EUROCAT membership should be transmitted to the Project Leader. Registry Description Questionnaire - pdf format Registry Description Questionnaire - Word format
2.	An expertise and interest in the field of the epidemiology of congenital anomalies should be demonstrated.
3.	The human and financial resources needed for running the registry should be made available at local level.
4.	The registry should cover a geographically defined population.
5.	The registration should include all types of congenital anomaly, should include registration of livebirths, stillbirths and induced abortions following prenatal diagnosis and should be based on multiple sources of ascertainment and emphasise high quality data. The registry should demonstrate the capacity to transmit to the Central Registry the EUROCAT standard data set on baby, diagnosis and risk factors (as specified in EUROCAT Guide 1.3)
6.	There are three types of membership (explained in detail in EUROCAT Membership Criteria): i    Full membership, the main type of membership, is for registries fulfilling EUROCAT criteria, transmitting       individual data on cases of congenital anomaly according to a standard format to Central Registry. ii   Associate membership is for registries unable to fulfill all the criteria for full membership, but able, as a      minimum,  to transmit aggregate data in the form of number of cases by type of birth by year for a list of      specified anomalies. iii  Affiliate membership is suitable for other registries. The application should be approved by the EUROCAT Steering Committee and the Registry Leaders.