Where Am I? -> ABOUT US -> What Is EUROCAT? -> How Does EUROCAT Function?
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How does EUROCAT function?

• Standard data concerning baby, diagnosis, mother and father (See Guide 1.3).

• Common coding system for standard data (see Guide 1.3).

• Standard computer data entry and validation programme available (see EUROCAT Data Management Programme).

• Anonymous data transmitted to the Central Registry which collates the pooled database, and carries out surveillance and research using the common database.

• Annual meetings of Registry Leaders to discuss data standardisation, surveillance and research.

• Steering Committee of elected Registry Leaders and Working Group Chairs.

• Prevalence data tables updated bi-annually with prevalence rates of 80 congenital anomaly subgroups in each Registry, with the number of cases reported among livebirths, stillbirths and terminations of pregnancy following prenatal diagnosis and trends in prevalence since 1980 (see Prevalence Data Tables).

• Extracts of the common database can be requested by researchers, by submitting a research protocol for approval (see Requesting other EUROCAT data).